Co-creation to write a project proposal
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About two years ago, we had the great opportunity to develop a proposal together with stakeholders. There was a national funding opportunity in the Netherlands to submit proposals to improve…
Research
STRIDER: new project to improve mobility of stroke survivors
In May we started a new Eurostars project called STRIDER together with two partners: Elitac Wearables (Utrecht, The Netherlands) and cereneo foundation (Vitznau, Switzerland). What is our goal and why…
RE-SAMPLE – Personalised care for patients with COPD and complex chronic conditions
In March 2021, the Horizon 2020 project RE-SAMPLE started (grant agreement No 965315). RE-SAMPLE is an acronym that stands for: REal-time data monitoring for Shared, Adaptive, Multi-domain and Personalised prediction…
Citizen Science and Rheumatoid Arthritis: The patient perspective
In the TOPFIT Citizenlab we have been working together with patients for over a year, starting with understanding their view on the monitoring process of rheumatoid arthritis and the usefulness…
Patients’ perspectives on the monitoring process of rheumatoid arthritis
Within the TOPFIT Citizenlab, we recently conducted a study to learn about the patients’ perspectives, when it comes to the monitoring process of rheumatoid arthritis. We asked about the current…
TOPFIT CitizenLab – Citizen Science for Health
Next to the Pharaon project, I am also involved in the research and innovation programme TOPFIT CitizenLab. This 3-year programme is a collaboration between University Twente, Saxion University of Applied…
Erwartungen und Erfahrungen mit für Patienten zugängliche elektronischen Gesundheitsakten (Kurzfassung meiner Dissertation)
Seit 2012 können Patienten in der schwedischen Region Uppsala über das Internet auf ihre elektronischen Gesundheitsakten zugreifen. Die Einführung des eHealth-Dienstes wurde von Ärzten und medizinischem Fachpersonal stark kritisiert und…
The Defence
Finally the day had come to defend my PhD thesis. Contrary to what I expected, I slept quite well and arrived at KTH university around nine o’clock. There I met…
Patients Reading Their Medical Records: Does it Increase or Decrease Anxiety?
The opportunity for patients to read their medical records through patient portals becomes more and more common. In a previous post, I wrote about the discussion around the right timing:…
Learning about Research and Research Methods through Podcasts
Research methods: There is so much to love about them, for example that they can guide you in a systematic way to find an answer to your research question. Being…