Research

RE-SAMPLE – Personalised care for patients with COPD and complex chronic conditions

September 6, 2021

In March 2021, the Horizon 2020 project RE-SAMPLE started (grant agreement No 965315). RE-SAMPLE is an acronym that stands for: REal-time data monitoring for Shared, Adaptive, Multi-domain and Personalised prediction…

Citizen Science and Rheumatoid Arthritis: The patient perspective

July 21, 2021

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In the TOPFIT Citizenlab we have been working together with patients for over a year, starting with understanding their view on the monitoring process of rheumatoid arthritis and the usefulness…

Patients’ perspectives on the monitoring process of rheumatoid arthritis

April 8, 2021

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Within the TOPFIT Citizenlab, we recently conducted a study to learn about the patients’ perspectives, when it comes to the monitoring process of rheumatoid arthritis. We asked about the current…

TOPFIT CitizenLab – Citizen Science for Health

October 10, 2020

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Next to the Pharaon project, I am also involved in the research and innovation programme TOPFIT CitizenLab. This 3-year programme is a collaboration between University Twente, Saxion University of Applied…

Erwartungen und Erfahrungen mit für Patienten zugängliche elektronischen Gesundheitsakten (Kurzfassung meiner Dissertation)

January 28, 2019

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Seit 2012 können Patienten in der schwedischen Region Uppsala über das Internet auf ihre elektronischen Gesundheitsakten zugreifen. Die Einführung des eHealth-Dienstes wurde von Ärzten und medizinischem Fachpersonal stark kritisiert und…

The Defence

November 29, 2018

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Finally the day had come to defend my PhD thesis. Contrary to what I expected, I slept quite well and arrived at KTH university around nine o’clock. There I met…

Patients Reading Their Medical Records: Does it Increase or Decrease Anxiety?

May 14, 2018

The opportunity for patients to read their medical records through patient portals becomes more and more common. In a previous post, I wrote about the discussion around the right timing:…

Learning about Research and Research Methods through Podcasts

May 4, 2018

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Research methods: There is so much to love about them, for example that they can guide you in a systematic way to find an answer to your research question. Being…

Patients’ Access to Their Records: What is the Right Timing?

April 27, 2018

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This week I attended the Medical Informatics Europe (MIE) conference in Gothenburg, which took place together with the Swedish eHealth conference Vitalis. Most of the talks at Vitalis were given…

Patient Accessible Electronic Health Records: Germany on its way to join the club?

December 15, 2017

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Doing Research on eHealth in Sweden I conduct my research in Sweden, in particular as part of the DOME consortium and the DISA project. This is very exciting for me;…